Hi!
So, I think I started up again a little too enthusiastically, and I think I have to slow down. It might take a while until my next upload, and I won't be as active as I've been the last month..
I guess I don't really have to explain myself, but it makes me feel better when I know you know, you know? Lol
For those who've been curious, I have ME/CFS. This is a disorder that takes away a lot of yor energy.
ME is something that is not being taken too seriously, and people don't really understand how hard it is. I have been very depressed earlier in my life, and I don't know what's worse. Feeling depressed and not wanting to do anything, or wanting to do a lot of things, but being stopped by what your body is capable of.
Right now my days look like this: getting up in the morning, stiff and with pain in every muscle and joints. Moving hurts, but I have to slowly loosen up my body to be able to get out of bed, and it can take a couple of hours. Getting up is exhausting so sometimes I have to rest before I can make my breakfast. I have a chair by the bench, so I can sit while I make my food. If I have a bad day, I can't sit upright for too long or I get dizzy and my pulse gets really high. After breakfast, I have a nap, because eating was exhausting! x) then I lay on the couch for the rest of the day.. If I have a good day, I can watch tv or draw. Once a week, if I've been good at not doing anything, I can drive to the store and buy some groceries, but I cannot drive for longer than 5 minutes. I can also make dinner if I 'm in a good period. Because I've been drawing I have not been able to get out of the house at all, and my boyfriend has been taking care of grocery shopping, house cleaning and making dinners.
If I do more than these things in a day I get a lot of symptoms like sore throat, flu like symptoms, joint/muscle pains, stomach problems/pains, vision problems, cognitive difficulties, weakness or paralysis in arms or legs, oversensitive to light, sound and smell, swollen lymph nodes, shortness of breath, tremor or trembling, low body temperature, or feever, cold extremities, high pulse. These symptoms comes in addition to feeling exhausted (fatigued). I could keep listing up symptoms, there is a lot of them!
I haven't really gotten any better this year, so I've had to get some technical aids. Next week I'll be getting an electric wheelchair so I can get out of the house. I live quite remote so I wont be able to go to the store with it, but I can at least drive into the close forest on "hiking-paths" and take my dogs with me. I've felt bad for not giving my dogs the activity they deserve, so that weighs up for the fear of driving past my neighbors houses in a wheelchair x)
I guess my last spurt of drawings was something I needed to do, even though I will pay for it in a while. I'm sick of doing nothing, not seeing progress, and not knowing or seeing the end of my sickness. I cant be a good living partner or girlfriend like this, I can't be a good aunt like this, I cant be follow up on friends or family like this. Im in an age where you start thinking about kids, and I cant do that like this. And I hate that I have to change my personality around this. I have to be less of a perfectionist, less enthusiastic, less helpful etc etc. I have been lucky in my life to have family and friends and the best boyfriend/living partner I could dream of, but I have no energy to enjoy it or take part in anything. I was not planning on making this into a rant, and I am sorry about that, but I really needed to vent....
Thanks for reading!